Hello everyone,
This is Alla reporting from room 19, 10th floor
of the Dornbecher Oregon Health and Science University Hospital. This is our
home for now, for another 5-7 weeks. It’s 9:15 PM and Zevi is sleeping. Today
has been a long and somewhat of a difficult day. I say somewhat difficult
because I don’t know what is to come.
Zevi is feeling okay now, tired from the sedation but feeling okay and
that’s all that matters.
A little bit about our day…
We had to wake up Zevi early this morning, around 7:30 AM to
get to the hospital. Yesterday, we let
the boys go to sleep late because of the special circumstances. At the hospital
Zevi had his IV put in, blood drawn, platelets transfused and was cleared for
surgery. A “central line” was surgically put inside Zevi’s chest, for the purposes
of giving all sorts of medications and blood draws. When Zevi awoke form the
surgery our poor little man was sleepy and crying. “No more of this” he told me
in Russian. I don’t think he noticed the line at first, but complained his neck
was hurting. The line is underneath the
skin in the neck and goes down to a vein in the chest. When he looked down and
saw the gauze and the tubes he asked “what is this for?”
I think we finally
got to the room around 4 PM; Zevi watched some cartoons but still was half asleep.
I tried, but he wouldn’t eat anything. Just had apple juice and some cholocalte
milk. Hopefully tomorrow he will eat something.
The one thing that gave him a distraction today was watching
Dad and Grandpa put up a solar system decal in the room. Zevi loves everything
related to Astronomy! He knows the solar system planets by heart. While the
solar system was going up Zevi casually inquired about Jupiter’s Great Red Spot
(a raging storm the size of three Earths).
Then he argued with Dad about the orbit of Pluto. You see, on the decal, Pluto
almost looks outside of the main solar system, now relegated to a “planetoid”
status. Zevi didn’t like that too much and wanted Pluto’s status as a full
planet restored.
Today it begins. The journey to the cure; to a life without
leukemia. I believe in Zevin’ka, he is going to make it and thrive! BELIEVE IT!
At 4 AM, Zevi will be given first dose of his pre-bone
marrow transplant medication. I pray his body will take it well.
Singing out for now…
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