Wednesday, August 20, 2014

Day +6

Today the suck continued in full force.  More specifically: the blood counts are low, yet kidney and liver indicators are fine.  We are giving ground in the battle for skin care, very slowly.  At the same time the diarrhea is not getting worse, at least; perhaps might be getting a little better.  The first few sores in the  mouth are now visible (just white spots), but do not seem to be bothering Zevi yet.  The gut continues to hurt.  The hair is falling out in earnest now.  Zevi is very hoarse and almost exclusively whispers.

All of the above is being handled with medicine.  Zevi is on many "anti-" drugs: -viral, -fungal, -biotic (I believe we are at four antibiotics at this point), anti-GVHD, anti-pain.  A couple "pro-": pro-liver and pro-kidney, I think.

For all this, when not in acute pain Zevi shows interest in things, sometimes sits up, smiles.  We continue the regimen of mouth washing.

What does help us all is the constant stream of cards that we receive.  I cannot tell you enough how much the support means to us, especially Alla who spends her days by Zevi's side.  Zevi, for his parts, enjoys ripping the envelopes and listening to us read the cards to him.

Many cards and three drawings on the wall
Two more drawing, five planets, and some(!) of the toys facing Zevi

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