Thursday, June 26, 2014

Another day, another check-up

Not to repeat the facebook page Super Zevi, but I am tired, so:

Today Zevi had a check up that included a CBC (blood work) as well as an EKG, and echo, and a chest X-ray. All came out fine, though the blood draw was a pain (literally) - both veins got "blown" - burst during the blood collection. On the third poke the blood was collected. 

Platelet count came in very low, so Zevi had his first platelet transfusion today. The docs decided to stop 6MP for now. The heart and lungs were declared in good shape.

Transplant news: donor 1 informed the transplant coordinator they will not be available in late July, so - for the moment - the schedule has slipped two weeks. This should have no effect in the end. In the mean time, donor 2 was confirmed as a full match and is being checked for availability. We might switch.

So - one day at a time. Doing well so far, thank G-D


 tOn the language front...Zevi and Benya continue to make more sense, or at least repeat more interesting things.  Benya, recently not happy with mom, shared with me: "Mom does not deserve candy.  She did not behave.  We will put her in the corner.  For an entire day."  After a brief negotiation mom's sentence was commuted.

Zevi napping while getting an EKG, 6/26/14

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