Thursday, June 5, 2014

A poke-free visit with the docs, another donor makes contact.

Today was a good day.  Zevi had a check-up at OHSU when no blood was drawn.  The first poke-free visit there.  I don't think the poor guy believed that he's gonna get away until we got to riding the cable car.  The visit went well - the docs did a physical exam and found Zevi to be doing fine over all.  The spleen may have gotten a touch larger, but not in any way that is concerning.  The important thing is that Zevi seems to tolerate 6MP and the drug just might be helping.  He is eating more, clearly has more energy.  So far so good. (t'fu-t'fu)

Also, our transplant coordinator shared more encouraging news.  The second of her most most promising donors made contact and scheduled a blood collection in a week.  We should have their results in two.  Meanwhile the blood work results of donor 1 are due mid next week.  Here is hoping.  Also, three promising cord blood units have been reserved for Zevi and are being tested.

Where does this leave us with all the testing many folks have kindly offered to get tested?  At the recommendation (urging, really), of our transplant coordinator we are going to suspend rapid testing of people for now.  Those willing to sign up for the registry please, please do it.  It is a kind thing to do.  Since we do not know yet how all the testing is going to turn out - please do consider yourselves in Zevi's "strategic reserve", for now placed on stand-by.  I will keep everyone posted.

No comments:

Post a Comment