Friday, January 2, 2015

Day +141

The recent two weeks have been good, if not perfectly smooth.  The recent blood numbers have been very good - ANC 5300, HGB 11.0, PLT 306 - new record.  WBC is 9.77 - the high side of normal, consistent with someone finishing off a viral cold.

Due to the same bug Zevi's eating has been varied.  Sleeping - don't even start me on sleeping.  Alla and I either split nights or one of us takes a whole one to give the other a break.  Stomach is functioning, but with occasional rumble, literal and figurative.  It is this "occasional" business that somewhat drives us nuts.  As the doc said, now that the immune suppression is over, if we are going to see GVH, we will see it in the next few months.  On top of that, we watch for signs of the way things were before the transplant, such as low fevers, not-eating and being tired.  Rare conditions for a toddler, right?  So, every loose stool, every day of poor eating raises an inevitable question of "is it GVH?  Do we scope him?"  On a rational level it is clear that a three year old whose food restrictions have been lifted recently will eat all manner of things and an occasional upset stomach is to be expected.  What can I say: in the language of computer games, we passed the "rational" level long ago, ran straight through "slightly off," entered into "straight up crazy," exited that into "barely keeping it together" which we regularly leave for a an extended stay in "sleep deprivation induced psychosis."  And that, my gentle reader, I want to make clear - is not me whining.  So far, we have done extremely well, things are going smoothly, and I have truly nothing to complain about for the 141 post-transplant days.

So let me leave 2014 with the following thought (and boy, are we ready to leave it!); it was a heck of a rough year, yet somehow I have reason to be very, very grateful.  Unlike some others, I do not do optimism, so this is as close as I get to being hopeful.  One more thought; thank you for being there, sticking with us, reading this.  Thank you.

We are ready to move on.  Blood sample for the most recent Chimerism test was drawn on Tuesday we are waiting for the test results.  One day, one test result at a time.

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