Day +131

Haven't written an update for a couple of weeks.  Some important dates have taken place.  For instance, on Sunday was the last day of immune suppression.  That's it - Zevi's new immune system is completely loose and we are down to one daily medicine.

Also, I was gone all of last week and Alla had to handle things here - with (more than) a little help from our friends.  The semi-weekly trip to the clinic went well, with all the numbers performing nicely.  Not everything has gone perfectly last week, however.  During one of the daily line flushings Alla noticed some blood - the line has burst (on the outside).  Long story short, folks at OHSU ER fixed up the line, your basic plumbing job.  The fix, however, held exactly one night and so Friday night Alla and Zevi were right back at OHSU.  Since the ripped line represents an infection risk, the decision was made to push the scheduled removal of central line forward.  So, as of Saturday morning - the line is out.  In the end, I came home to Zevi with no line and just in time to give him the final (we really, really hope!) dose of Tacrolimus.

At his point both Benya and Zeva have runny noses and a bit of a cough.  Zeva did spike a bit of a fever, but it is below the 38 C line and is clearly related to the bug.  We hope it does not go higher and we don't have to head to OHSU.  We will be watching the fever carefully.

What has been working a little better, knock on wood, is sleeping.  Last few nights Alla has not really slept in the boy's room and the slept nicely on Sunday, both day and night, which I really appreciated with Alla already exhausted and me recovering from jet lag.

While this was not an easy week - especially for Alla - we are all home and Zeva is without this line and off immune suppression.  We breathe, hope for another good night's sleep and keep going.