Monday, September 29, 2014

Day +46

The weekend was not exactly easy but not bad.  The dressing change on Friday night was not without it's own adventures, but it is done.  Tomorrow is another clinic day.

The sleeping continues to be somewhat of a challenge.  Recently Alla came to the conclusion that Zevi is entirely too attached to his iPad and it is interfering with his sleep pattern.  So, Saturday we have gone pretty much cold turkey.  This did not improve the atmosphere in the house, but Zevi does seem to be doing better with this and - let's hope - sleeping better.

And speaking of atmosphere.  Yesterday Zevi got the runs.  A day of liquid poops by itself is not a concern in a three year old.  However, in a BMT (Bone Marrow Transplant) patient is can be a sign of something more serious.  The good news was that Benya has similar symptoms.  Yes, good news - because it quite likely means a stomach virus, not Graft vs. Host.  OHSU told us to watch and hold as long as there is no fever.  There isn't.  Today there is some more pooping a couple of sore butts.  Hopefully the folks at OHSU agree that this nothing more than a stomach thing.

Also yesterday I went for a late night walk with Zevi and he walked by himself more that he would have been willing to a year ago.  Let's take that as a good sign.

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