Monday, July 7, 2014

today's update

Over the last two three days, as expected without 6MP, Zev's platelets went up, as did the white blood cells.  This resulted in the usual effects - feeling weaker, loss of appetite, progressively poor sleep.  Last night was pretty rough, especially on Alla - Zeva refused to sleep even next to her.  We have been managing by a staggered blend of Ibuprofen and Tylenol.

Today Zeva had another check-up.  Platelets at 105k (far from dangerous, far from healthy), white blood cells at 30k (2.5-3 times normal).  Restarting 6MP at a slightly smaller dose.

Another scheduling change.  Donor 2 is now the primary candidate, with the tentative admission date back to July 22nd and tentative transplant date of August 1st.

In other news...
Over the 4th we spent an entire week with the family at Sunriver, OR.  The boys swam in the pool, played in an awesome sand box, walked atop a volcano and rode in strollers through a resulting lava field.  They also saw various snakes and frogs in a couple of local museums.  They got to sit in a police car and watch a fire truck up close on the 4th of July parade.

Also, we cut Zevi's hair.  Short.  Here is a pic from last night.
That's right, that's *two* ice creams, people!

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