We have made it to day +100 -- three days past that, to be exact -- and that is somewhat of a milestone. Most recent genetic test showed, once again, that Zevi is negative for the genetic mutation associated with JMML. Today's lab numbers look good as well - HGB up a tiny bit, WBC and ANC both down a little, but within normal range. Platelets are up a little more to 193. Good news.
We have now basked in the glory that is the milestone, and back to the business of surviving one day at a time. Today was a good day, thank G-D. We will take it and as many like it as we can.
Over the weekend Alla and I ran away for two nights to nearby undisclosed location. The location included a spa, a gym, a comfy bed and no monitor to remove us from it. It was a welcome break.
The boys were nicely cooperative, treating the Boston grandparents very decently. Zevi even slept fairly well, waking up only 2-3 times per night. Of course, he saved the night time pain-in-the-ass-ness for us, once we returned. I am sorely tempted to chase Alla and Benya, and possibly the grandparents, out of the house over Thanksgiving and do some toddler sleep training. We shall see.
In the mean time - we had a good weekend followed by a good day at the lab. Amen.
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