Friday, September 19, 2014

Day +36, good news continues

The night was rather rough.  I was summoned around 3am and promptly informed by Zevi that I am chopped liver and he wants mom.  Poor Alla spend 1 hr 40 min in the boy's room, some of that time having a debate with Zevi about the wisdom of going downstairs.  Feeling (more than) a little guilty Alla told Zevi that going downstairs is not allowed while hooked up to a pump.  Zevi reasonably reminded her that he has, indeed, been downstairs earlier while already hooked up to a pump.  In the end Alla won by endurance and finished the night out in our bed.  Only to be woken at 6:45 to change the diaper, the pants, the bed sheet.  That smoothly morphed into unhooking the TPN and flushing the lines and then it was time to start the day.

Today Zevi had a clinic visit, one of two (at least) he will have every week for the next couple of months.  The numbers continued to improve: WBC = 5.25; ANC = 1360; Platelets = 70, HGB = 11.4.  In other words, Hemoglobin at healthy levels, WBC and platelets at a new high, and neutrophils pretty much holding steady.

The much more important news came with test results: all clear!  Specifically, the bone marrow results look good and the chimerism test (looking at whose bone marrow cells are growing) showed 100% donor.  Does not get better than this.  To be clear; the test has accuracy of 1-5%.  The result is for today and the trend needs to hold.  Next test is in a month.  It appears the current sprint has gone magnificently.  Another bit of champagne is in order before the next sprint begins.  Likely around 2am tonight, with preemptive diaper change.

Tonight Zevi also bathed in the bath, for the first time in good three weeks.  This too was met with stern opposition, since it involved touching of the tubes (to protect from the bath water with a plastic film).  While Benya was being bathed, Zevi told my dad downstairs: "My tummy hurts, therefore I cannot bathe!".  As soon as my dad said "fine, stay here and play with the iPad" the tummy ache was forgotten.

In the end everyone was bathed, tired, and in bed a little earlier today.  Perhaps I shall follow the boys' good example.

A truly excellent day.  Thank G-D and a great weekend to all.

Hanging out with dad by the big bear.  9/18/14

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